“The March of Dimes recognizes the tremendous potential of genetic screening can only be realized if people feel secure that their genetic information will not be used to deny them health insurance or employment. We applaud the United States Senate today for approving the “Genetic Information Nondiscrimination Act of 2005” (S. 306), a bill that would provide the public with such security.
“The March of Dimes pioneered genetic services, including counseling and testing of individuals at risk. Because of our efforts, every state now provides newborn screening for a number of conditions that can be treated.
“Genetic screening has the potential to produce amazing benefits in the recognition and treatment of diseases. To fully reap these benefits, patients must be protected from discrimination in health insurance and employment. S. 306 offers the necessary protections by prohibiting health plans and insurers from using genetic information or services to make enrollment decisions or SET premiums.
“It would be a shame if parents were afraid to take advantage of the benefits of genetic testing and newborn screening because they feared retaliation from insurers. The March of Dimes urges the House of Representatives to pass and the President to sign this important legislation.
The March of Dimes is a national voluntary health agency whose mission is to improve the health of babies by preventing birth defects and infant mortality. Founded in 1938, the March of Dimes funds programs of research, community services, education, and advocacy to save babies and in 2003 launched a campaign to address the increasing rate of premature birth. For more information, visit the March of Dimes Web site at marchofdimes.com or its Spanish Web site at nacersano.org.
