Advocacy agenda for the 113th Congress
The March of Dimes advocacy agenda in Washington, D.C., focuses on public policies and programs that improve the health of our nation’s families by preventing birth defects, premature birth and infant mortality.
See also: The March of Dimes advocacy agenda for the 113th Congress.(PDF, 570 KB)
Investments in maternal and child health improve the well-being and quality of life for women, infants, children, and families while reducing government costs in medical care, education, and other areas.
See also: Sequestration: Impact on Women, Infants, Children and Families.(PDF, 149 KB)
Newborn screening: Secretary's Advisory Committee on Heritable Disorders in Newborns and Children (SACHDNC)
A key concern for the March of Dimes is the continuing operation of the Secretary’s Advisory Committee on Heritable Disorders in Newborns and Children (SACHDNC). The SACHDNC’s charter will expire in April if the Newborn Screening Saves Lives Act is not reauthorized or the Department of Health and Human Services fails to take action to extend its term. Allowing the committee to expire would eliminate a well-established and scientific process for evaluating newborn screening and providing guidance to states. More than 70 organizations wrote to Administrator Mary Wakefield urging the continuation of the SACHDNC.
See also: Letter to Administrator Mary Winkfield
Congressional Lunch Briefing: Newborn Screening: 50 Years of Saving Babies’ Lives
Leading national maternal and child health organizations, including the March of Dimes, will sponsor a Congressional Lunch Briefing entitled “Newborn Screening: 50 Years of Saving Babies’ Lives” on Wednesday, April 17, on Capitol Hill.
Title V of the Social Security Act, was signed into law by President Franklin D. Roosevelt in 1935. Title V, or the Maternal and Child Health (MCH) Services program, pledged support to states to provide services that would protect the "health of our nation's mothers and children."
Multiple federal agencies support prematurity-related research but among the most engaged are the Eunice Kennedy Shriver National Institute of Child Health and Human Development at the National Institutes of Health and Maternal and Infant Health Research within the Centers for Disease Control and Prevention.
Two key resources are the National Newborn Screening and Genetics Resource Center and the March of Dimes. You can easily compare state programs on our Peristats website.