E-MAIL NEWSLETTER August, 2004

Dear Friend

Image Spacer A new feature included in this newsletter for most of you is the local events section. It highlights three upcoming events in your area. To get more news and information about what's happening in your local chapter, visit our chapter Web site directory.

In this month's Personal Spotlight, we feature the story of Jaden who was born 16 weeks too soon. Because you are part of the March of Dimes family, we're sharing Jaden's story with you as well as the following:

what is Down syndrome?
new PeriStats Web site
"Tip of the Month"
an archival photo of Marilyn Monroe

  PERSONAL SPOTLIGHT: JADEN - 16 WEEKS EARLY
 
Dear March of Dimes,
 
   

We were so excited about expecting our first child. It was February, and I was beginning the 24th week of my pregnancy. My husband was thrilled to feel the baby kick and move for the first time, and we were making plans to welcome this new little person into our family.

Our plans soon began to change. I began hemorrhaging late one night, and we rushed to the ER. The doctor felt everything was probably okay. I would need to stay overnight attached to a fetal monitor, and an ultrasound would be done as a precaution. Soon contractions began and I was in labor. An IV was started to stop the labor, but the contractions only intensified.

After the ultrasound, we were told the baby would need to be taken immediately. I was given a shot in hopes it could work quickly enough to be of some help to the baby's lungs. Doctors came in one by one and explained their part in what was about to happen. I was numb. I could barely take in everything that was being said but understood that the baby was breech and would be born by emergency caesarean.

Born 16 weeks premature, weighing 1 lb. 8 oz., Jaden Paige arrived on February 4, 2001. After being stabilized, Jaden was transferred by ambulance to the Clear Lake Regional Neonatal Intensive Care Unit (NICU). Her strength truly amazed us. Jaden faced life-threatening complications and breathing was her biggest problem. She developed bronchopulmonary dysplasia, and her lungs collapsed repeatedly. Infections kept her from progressing the way we had hoped, but she continued to fight. At almost 2 months old she was finally stable enough to be held for the first time. She remained intubated for months before she started the gradual transition to an oxygen canula. She also developed retinopathy of prematurity, but her sight was saved with laser eye surgery. With the wonderful care from the doctor and the NICU staff, Jaden grew stronger and healthier. After 132 days in the NICU and many prayers, Jaden came home still on oxygen, monitors, and several medications.

Today, Jaden is a healthy, happy, and "normal" child. Although she will always have medical concerns, Jaden has truly been blessed. She has some developmental delays, but inspires those around her with her determination to succeed. We love and admire our daughter immensely and will forever be thankful to the doctors, nurses, and therapists who helped Jaden along her way. We also realize that many of the advancements in neonatal care that aided in Jaden's survival were developed through March of Dimes research.

Our family was happy to participate in WalkAmerica this year to help ensure that this lifesaving research continues. We support the March of Dimes in their efforts to help premature children and to reduce preterm births. Their fight against prematurity is truly saving tiny lives, and, for that, we can all be thankful.

J.P. and Shanna

Make a donation in honor of Jaden.

 
 
  WHAT YOU NEED TO KNOW

Down syndrome
What is it?
Down syndrome is a disorder that includes a combination of birth defects; among them, some degree of mental retardation, characteristic facial features and, often, heart defects, problems with vision and hearing, and other health problems. The severity of all of these problems varies greatly among affected individuals. Down syndrome is one of the most common genetic birth defects, affecting approximately one in 800 to 1,000 babies. It generally is caused by an extra chromosome, the structures in cells that contain the genetic information (genes).


Find out more about what you need to know from our
Pregnancy & Newborn Health Education Center. ®

  NEWS FROM THE MARCH OF DIMES
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NEW PERISTATS® WEB SITE PROVIDES EASY ACCESS TO MORE THAN 60,000 GRAPHS, MAPS, AND TABLES ON PERINATAL HEALTH

WHITE PLAINS, N.Y., August 17, 2004 – The March of Dimes announced today that it has released a complete redesign of its popular PeriStats Web site, offering the most current and detailed maternal and infant health statistics available in the United States. Funding was provided by the National Library of Medicine, National Institutes of Health through a 2-year grant collaboration with the New York Academy of Medicine.

The new PeriStats Web site offers state-specific perinatal data, including detailed data for the largest cities and counties in the United States, and is available free of charge at www.marchofdimes.com/peristats


  50th ANNIVERSARY OF THE
SALK POLIO VACCINE FIELD TRIAL


The Salk vaccine field trial began on April 26, 1954. To commemorate this historic anniversary, throughout 2004, Miracles is going to bring you a different vintage photograph from the March of Dimes archives taken during the polio vaccine rollout 50 years ago.

« Marilyn Monroe helped support the March of Dimes.

Best,

Editor
Miracles Online
March of Dimes

  HOW YOU CAN HELP
 
 
  TIP OF THE MONTH