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2004 |
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Dear Friend
A new feature included in this newsletter for most of you is the
local events section. It highlights three upcoming events in your
area. To get more news and information about what's happening in
your local chapter, visit our chapter
Web site directory.
In this month's Personal Spotlight, we feature the story of Jaden
who was born 16 weeks too soon. Because you are part of the March
of Dimes family, we're sharing Jaden's story with you as well as
the following:
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what is Down syndrome? |
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new PeriStats Web site |
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"Tip of the Month" |
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an archival photo of Marilyn Monroe |
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We were so excited about expecting our first child. It was February,
and I was beginning the 24th week of my pregnancy. My husband was
thrilled to feel the baby kick and move for the first time, and
we were making plans to welcome this new little person into our
family.
Our plans soon began to change. I began hemorrhaging late one night,
and we rushed to the ER. The doctor felt everything was probably
okay. I would need to stay overnight attached to a fetal monitor,
and an ultrasound would be done as a precaution. Soon contractions
began and I was in labor. An IV was started to stop the labor, but
the contractions only intensified.
After the ultrasound, we were told the baby would need to be taken
immediately. I was given a shot in hopes it could work quickly enough
to be of some help to the baby's lungs. Doctors came in one by one
and explained their part in what was about to happen. I was numb.
I could barely take in everything that was being said but understood
that the baby was breech and would be born by emergency caesarean.
Born 16 weeks premature, weighing 1 lb. 8 oz., Jaden Paige arrived
on February 4, 2001. After being stabilized, Jaden was transferred
by ambulance to the Clear Lake Regional Neonatal Intensive Care
Unit (NICU). Her strength truly amazed us. Jaden faced life-threatening
complications and breathing was her biggest problem. She developed
bronchopulmonary dysplasia, and her lungs collapsed repeatedly.
Infections kept her from progressing the way we had hoped, but she
continued to fight. At almost 2 months old she was finally stable
enough to be held for the first time. She remained intubated for
months before she started the gradual transition to an oxygen canula.
She also developed retinopathy of prematurity, but her sight was
saved with laser eye surgery. With the wonderful care from the doctor
and the NICU staff, Jaden grew stronger and healthier. After 132
days in the NICU and many prayers, Jaden came home still on oxygen,
monitors, and several medications.
Today, Jaden is a healthy, happy, and "normal" child.
Although she will always have medical concerns, Jaden has truly
been blessed. She has some developmental delays, but inspires those
around her with her determination to succeed. We love and admire
our daughter immensely and will forever be thankful to the doctors,
nurses, and therapists who helped Jaden along her way. We also realize
that many of the advancements in neonatal care that aided in Jaden's
survival were developed through March of Dimes research.
Our family was happy to participate in WalkAmerica this year to
help ensure that this lifesaving research continues. We support
the March of Dimes in their efforts to help premature children and
to reduce preterm births. Their fight against prematurity is truly
saving tiny lives, and, for that, we can all be thankful.
J.P. and Shanna
Make a donation
in honor of Jaden.
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Down syndrome
What is it?
Down syndrome is a disorder that includes a combination of birth
defects; among them, some degree of mental retardation, characteristic
facial features and, often, heart defects, problems with vision
and hearing, and other health problems. The severity of all of these
problems varies greatly among affected individuals. Down syndrome
is one of the most common genetic birth defects, affecting approximately
one in 800 to 1,000 babies. It generally is caused by an extra chromosome,
the structures in cells that contain the genetic information (genes).

Find
out more about what you need to know from our
Pregnancy
& Newborn Health Education Center. ®

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NEW PERISTATS® WEB SITE PROVIDES EASY ACCESS TO MORE THAN 60,000 GRAPHS,
MAPS, AND TABLES ON PERINATAL HEALTH
WHITE PLAINS, N.Y., August 17, 2004 The March of
Dimes announced today that it has released a complete redesign of
its popular PeriStats Web site, offering the most current and detailed
maternal and infant health statistics available in the United States.
Funding was provided by the National Library of Medicine, National
Institutes of Health through a 2-year grant collaboration with the
New York Academy of Medicine.
The new PeriStats Web site offers state-specific perinatal data,
including detailed data for the largest cities and counties in the
United States, and is available free of charge at www.marchofdimes.com/peristats

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The Salk vaccine field trial began on April 26, 1954. To commemorate
this historic anniversary, throughout 2004, Miracles is going to bring
you a different vintage photograph from the March of Dimes archives
taken during the polio vaccine rollout 50 years ago.
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Best,

Editor
Miracles Online
March of Dimes |
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