E-MAIL NEWSLETTER June, 2005

Dear Friend,

Top Story Image Summer has arrived....finally. But work at the March of Dimes continues at an unprecedented pace. Our website is continually changing to answer the needs of moms and dads. Also, our Share site provides everyone with an opportunity to be a part of community that discusses what you want to discuss. Many of our personal stories comes from this site.

While I'm on the topic of websites, our new Shop To Help area is now open for business. We have many different styles of Shirts, Onesies, Kid T-Shirts, Journals, Mugs and more that all support the March of Dimes. Browse our different styles of logo wear, NICU Parent/Graduate clothes, Share items and things bearing our popular Ribbon emblem. Be sure to check back often as we are always adding new items

Research is a vital part of our efforts. You read about our second Prematurity Research Initiative (PRI) in the last issue of Miracles. In this issue, you'll read about our third grant to find out why African-American mothers have 2 to 3 times as many preterm births as other ethnic populations?

This month's Personal Spotlight features the story of Jordan Michelle. Because you are part of the March of Dimes family, we're sharing this story with you. Also, in this issue you find information about:

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  Dear March of Dimes,  
   

As a type 1 diabetic, I knew my pregnancy was gonna be a long, rocky road. And it was! I went on modified bedrest at 20 weeks for preterm labor, and then at 30 weeks I went on hospital bedrest for preeclampsia. A few times over the next 4 weeks my doctor thought he was going to have to deliver, but we managed to hold off with medication and rest. However, Saturday, December 11, 2004 at 7:45 am, my daughter's heart rate dropped into the nineties for four minutes. The nurses called my OB and started prepping me immediately for surgery. It was all such a whirlwind. But, at 10:12 am, Jordan Michelle was born at 34 weeks gestation. She was pink and screaming, her APGAR scores were 9/9, and she was just gorgeous. I lay on the table absolutely relieved. They handed Jordan to my husband and I got to look at her face for a few minutes. She was the most beautiful thing I had ever seen. They took her to the nursery for a weigh in and my husband went with her. Everyone in the OR was saying, "Oh, your daughter is perfect, she's a take-home baby!" My obstetrician, on the otherhand, was not so optimistic. "No, I think she'll be in the NICU for a while. Remember, I had to give you steroids for her lung development and your blood sugars were pretty fragile during the last few weeks." We had spent months preparing ourselves for the worst, so somehow I wasn't quite as worried. They took me to recovery, and shortly after my husband came in and told me they had to intubate Jordan. My heart sunk. They had tried oxygen and CPAP, but she needed an ET tube. She had an umbilical line with a swan catheter, which scared the heck out of me. I didn't get to see her for almost 48 hours because I was so sick. Seeing her for the first time was heartwrenching, but somehow amazing. Here was this perfect little person hooked up to all these tubes. She was HUGE compared to the other babies at 6 lbs 2 oz, and 17 in long, but that was because of my diabetes. She had lots and lots of dark hair, and was soooo jaundiced! She was doing quite well, but gave the neonatologists quite a scare. Those next few days were a blur, but on tuesday morning I walked into the NICU to visit, and to my surprise... she was extubated and breathing on her own! I got to look at my daugher's beautiful face, and really see it... for the first time. They also removed her umbilical line, and it took them four tries to put in a peripheral IV! That was awful. I held my daughter and looked at her face... I knew i had been holding heaven. They told me that while she was intubated, she kept trying to pull out her ET tube... so they put mittens on her. Then she started to pull off the mittens and then pull at the ET tube! Dr. Manginello, our wonderful neonatologist, said, "Boy, she's got a 'tude!" They said they were going to try and start nipple feeding her later that day, but they weren't sure how well that was going to go. Later that night I came in, and they said she had eaten the whole bottle, (hey, it was only 1 oz, but that's a lot!) and was looking for more. She hasn't stopped since. They did lots of tests, cranial ultrasounds, a battery of x rays, bloodwork, an echocardiogram and lord knows I can't even remember what else. Miraculously, they were all fine. She had a minor PDA which closed by the time she was 2 weeks old, and was jaundiced, so spent a few days under her bililights. Miraculously, on Sunday, December 19th, just 8 days later, Jordan came home and spent her first christmas with her mommy and daddy.

My little preemie with a 'tude is now 4 months old, and has more rolls than a bakery. She smiles and laughs, manages to puke on my work clothes every day, and loves her bathtub. She is always looking around for daddy, and coos at grandma. She keeps me up all night listening to her babbling to her mobile in her crib, and I love every second of it. I don't know what my life would be like without her, and I don't want to find out.

I know I got very lucky, and comparatively my story is minor compared to those of others. I attribute most of Jordan's success to the diligent care of my OB and perinatologists, and the wonderful neonatal care of Valley Hospital's Dr. Frank Manginello (Ridgewood, NJ) and the wonderful staff of the NICU.




 

 
 
  WHAT YOU NEED TO KNOW
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Mercury

If a woman is exposed to high levels of mercury while she is pregnant, her health and the baby's health are threatened. A woman can take several actions to help reduce the amount of mercury she and her baby are exposed to.
Mercury is a metal that is found naturally in several forms. It is a shiny, silvery-white liquid used in thermometers. Mercury can evaporate and become a colorless, odorless vapor. It can combine with other material to form compounds that are dangerous to human health

Find out more about what you need to know from our
Pregnancy & Newborn Health Education Center.®

  Prematurity Research Initiative
The March of Dimes has awarded its new national Prematurity Research Initiative (PRI) grants to learn more about the causes of prematurity. Premature birth can put the baby at risk for death, lifelong consequences like mental retardation, lung disease, and blindness. Yet the causes of nearly half of all premature births are unknown. The March of Dimes has awarded almost $2 million for a 3-year period beginning March 1, 2005 to six promising research projects seeking the answers to this difficult problem. Here's a description of the third grant. Future issues of Miracles will describe the other grants.

Solving the Mystery of African American Prematurity.
Dr. Jerome F. Strauss at the University of Pennsylvania is looking at 400 newborns and their parents to answer the question: Why do African-American mothers have 2 to 3 times as many preterm births as other ethnic populations? Dr Strauss wants to identify genes in the fetus and newborn that contribute to prematurity and to newborn health outcomes following preterm birth, helping to explain why some. premature babies do far better than others.. The research is designed to identify gene markers that predict prematurity and adverse newborn outcomes after preterm birth. Dr. Strauss thinks such information will provide targets for treatment based on the discovery of genes that are protective or confer risk.

News from the March of Dimes

 

Pregnancy Cannot Protect Women From Depression, Experts Say

NEW YORK, JUNE 2, 2005 – Although most people think of pregnancy as a joyful time, for some women pregnancy can bring a new occurrence or a recurrence of serious depression.

"A growing body of literature suggests that pregnancy does not protect women against depression," said Lee S. Cohen, M.D., associate professor of psychiatry at Harvard Medical School and director of the Perinatal and Reproductive Psychiatry Clinical Research Program at the Massachusetts General Hospital, Boston. He said it is estimated that 10 percent of pregnant women in the United States suffer from depression, some of it undiagnosed.

Dr. Cohen spoke today at a March of Dimes National Communications Advisory luncheon here.

Diagnosis of depression in pregnancy can be difficult because symptoms such as fatigue, changes in sleep patterns, and appetite changes are normal in pregnant women. A careful evaluation must be made and careful thought given to intervention, Dr. Cohen said. The benefits and risks for both mother and baby of pharmacologic or nonpharmacologic treatments must be considered.

"We urge doctors to be vigilant for signs of depression in their pregnant patients," said Dr. Jennifer Howse, president of the March of Dimes. "We also urge drug manufacturers to conduct more post-marketing surveillance of their anti-depression drugs so that physicians and patients can have better safety data available to them for making treatment decisions."


 
Best,
David
Editor

Miracles Online
March of Dimes
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