E-MAIL NEWSLETTER November, 2004

Dear Friend,

Image Placeholder Thank you for supporting the second annual Prematurity Awareness Day on November 16. Buildings, bridges and landmarks across the country were lit in pink and blue to remind Americans of the growing crisis of premature birth. Many of you took time out to visit our site clicktosavebabies.org, and share your story, sign our petition and/or donate. We look forward to your continued support throughout the year as we battle prematurity and birth defects.

In this month's Personal Spotlight, we feature the story of Lif and Plez and their constant battle with RSV. Because you are part of the March of Dimes family, we're sharing their story, as well as the following:

Information about the flu and pregnancy
African-American women and prematurity
"Tip of the Month"
Archival photo of Sammy Davis, Jr.

  PERSONAL SPOTLIGHT: BATTLE WITH RSV
 
Dear March of Dimes,
 
    In May 2001, six weeks early, we welcomed our twin boys, Lif Conner (4 lbs., 6 oz.) and Plez McGhee (5 lbs., 1 oz.). Our sons remained in the NICU for 15 days after they were born.

The months that followed were filled with many scary days and nights. Our twins - in a high-risk category: preemies, low birthweights, multiple birth, males and a family history of asthma - contracted respiratory syncytial virus (known as RSV) five times in two short years. As a result, they have multiple doctors including a pediatrician, an immunologist, an allergist, a sinus disease specialist and a pediatric pulmonologist.

Our boys were only four months old when the pediatrician diagnosed them with RSV for the first time. They were sent home with a nebulizer. We did not understand the dangers of RSV before that time, but now we understand all too well that RSV is a common and highly contagious virus that causes symptoms like the common cold for most kids (almost 100% of children will have RSV before they turn two). But for premature infants, or babies born with chronic lung disease or congenital heart disease, RSV can cause severe, even life-threatening illness.

Just before their first Christmas, the boys were hospitalized for nearly a week with their second bout of RSV. During follow-up visits with our pediatrician, we started the process to get insurance approval for preventive injections. The approval process took five weeks, and the boys did not receive their first shots until February - more than halfway through the RSV season. (RSV season, like flu season, lasts from fall to spring.)

Later that February, we rushed the twins to the ER, where we insisted they be tested yet again for RSV. The staff told us to take our babies home since the lab would not have results for several hours. Finally, the hospital called and told us to return immediately. The boys had RSV again. The doctors increased their medications and added a strong antibiotic.

Unfortunately, that was not the end of our experience with RSV. Our boys contracted RSV for the fourth time when they were 19 months old and for the fifth time just a few months later. Their respiratory systems just could not rebound fast enough.

Both boys have scarring in their lungs and still receive nebulizer treatments at the age of 3½. But as parents, we believe the shots during RSV season helped to keep our twins out of the hospital more than once.

We encourage parents to be aware, request testing if you suspect RSV and to act quickly if there is a diagnosis. Be prepared to get second opinions and to stand your ground with your insurance company - it is your child's health and maybe even his life at stake.

Lori & Patrick

For more information on RSV visit:
Respiratory Syncytial Virus (RSV) at marchofdimes.com

 
 
  WHAT YOU NEED TO KNOW
Image Placeholder

Flu and Pregnancy

IMPORTANT: The United States is experiencing a severe shortage of flu vaccine this winter. Pregnant women are on the priority list for the limited supply of vaccine. If you are pregnant, make an appointment with your health care provider for a shot as soon as possible.


Find out more about what you need to know from our
Pregnancy & Newborn Health Education Center.®

  NEWS FROM THE MARCH OF DIMES
Why Are African-American Women Twice as Likely to Have a Premature Baby?

March of Dimes Says Research is the Answer

NEW YORK CITY, OCT. 22, 2004 – No one knows why African-American women go into labor three or more weeks early, more often than babies of any other race or ethnicity, according to the March of Dimes.


  50th ANNIVERSARY OF THE
SALK POLIO VACCINE FIELD TRIAL


The Salk vaccine field trial began on April 26, 1954. To commemorate this historic anniversary, Miracles is bringing you different vintage photographs from the March of Dimes archives taken during the polio vaccine rollout 50 years ago.

« Sammy Davis, Jr., helped support the March of Dimes.

Best,

Editor
Miracles Online
March of Dimes

  HOW YOU CAN HELP
 
 
  HOLIDAY CARDS
 
  EBAY AUCTION
 
  TIP OF THE MONTH