| |
 |
|
In May 2001, six weeks early, we welcomed
our twin boys, Lif Conner (4 lbs., 6 oz.) and Plez McGhee (5 lbs.,
1 oz.). Our sons remained in the NICU for 15 days after they were
born.
The months that followed were filled with many scary days and nights.
Our twins - in a high-risk category: preemies, low birthweights, multiple
birth, males and a family history of asthma - contracted respiratory
syncytial virus (known as RSV) five times in two short years. As a
result, they have multiple doctors including a pediatrician, an immunologist,
an allergist, a sinus disease specialist and a pediatric pulmonologist.
Our boys were only four months old when the pediatrician diagnosed
them with RSV for the first time. They were sent home with a nebulizer.
We did not understand the dangers of RSV before that time, but now
we understand all too well that RSV is a common and highly contagious
virus that causes symptoms like the common cold for most kids (almost
100% of children will have RSV before they turn two). But for premature
infants, or babies born with chronic lung disease or congenital
heart disease, RSV can cause severe, even life-threatening illness.
Just before their first Christmas, the boys were hospitalized for
nearly a week with their second bout of RSV. During follow-up visits
with our pediatrician, we started the process to get insurance approval
for preventive injections. The approval process took five weeks,
and the boys did not receive their first shots until February -
more than halfway through the RSV season. (RSV season, like flu
season, lasts from fall to spring.)
Later that February, we rushed the twins to the ER, where we insisted
they be tested yet again for RSV. The staff told us to take our
babies home since the lab would not have results for several hours.
Finally, the hospital called and told us to return immediately.
The boys had RSV again. The doctors increased their medications
and added a strong antibiotic.
Unfortunately, that was not the end of our experience with RSV.
Our boys contracted RSV for the fourth time when they were 19 months
old and for the fifth time just a few months later. Their respiratory
systems just could not rebound fast enough.
Both boys have scarring in their lungs and still receive nebulizer
treatments at the age of 3½. But as parents, we believe the
shots during RSV season helped to keep our twins out of the hospital
more than once.
We encourage parents to be aware, request testing if you suspect
RSV and to act quickly if there is a diagnosis. Be prepared to get
second opinions and to stand your ground with your insurance company
- it is your child's health and maybe even his life at stake.
Lori & Patrick
For more information on RSV visit:
Respiratory
Syncytial Virus (RSV) at marchofdimes.com
|
|
 |