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Newborn Screening

The National Newborn Screening and Genetics Resource Center (NNSGRC) provides the March of Dimes with newborn screening data on a continual basis. With funding from the federal Health Resources and Services Administration (HRSA), NNSGRC tracks the screening status in each state for each of the 31 core newborn screening conditions adopted by the Secretary of Health and Human Services in 2010. The 31 core newborn screening conditions include 29 conditions recommended in a 2004 report developed by the American College of Medical Genetics (ACMG) and 2 new conditions, severe combined immunodeficiency, and critical congenital heart defects recommended by the Secretary's Advisory Committee on Heritable Disorders in Newborns and Children (SACHDNC) in 2010. NNSGRC also tracks secondary target conditions that are not available on the PeriStats web site. Data is based on voluntary information provided by state newborn screening programs and reflects the most up-to-date information in the United States. NNSGRC publishes this information in the National Newborn Screening Status Report. Through the PeriStats web site, the March of Dimes Perinatal Data Center makes the data available in a series of 31 downloadable United States maps. While the data on the NNSGRC and PeriStats web sites is synchronized, it is possible that some state data may not be current due to lag time in state reporting.

Information from NNSGRC's National Newborn Screening Status Report is collapsed into three categories on the PeriStats condition-specific maps:

PeriStats Map Legend NNSGRC Status Report Symbol
Light Blue: Universally required by law or rule
Medium Blue: Testing required but not yet implemented C
Dark Blue: Not universally required by law or rule A,B,D, or not testing

A: universally offered but not yet required.
B: offered to select populations or by request.
D: likely to be detected and reported as a by-product of MRM screening targeted by law or rule.

Below each map is the estimated percent of live births screened for the core condition. This percentage is based on the sum of live births in states where newborn screening for the condition is universally required by law or rule divided by all live births in the United States and multiplied by 100.