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Genetics Education/Awareness Sites on the Internet
Private/Nonprofit Organizations
Alzheimer Research Forum
The Forum was established for the purpose of enhancing information access and promoting collaboration both within the traditional Alzheimer's research community and across the numerous scientific disciplines that can contribute to the global effort to understand and treat Alzheimer's disease.
American Cancer Society
The ACS is a nationwide, community-based, voluntary health organization dedicated to eliminating cancer as a major health problem. This Web site provides a broad range of scientific, research, advocacy, service, and education information about cancer.
American Diabetes Association
The ADA is a community-based, nationwide, voluntary health organization dedicated to eliminating diabetes as a significant health problem. This Web site contains a broad range of scientific, research, advocacy, service, and education information about diabetes.
American Heart Association
The AHA is a nationwide, community-based, voluntary health organization dedicated to eliminating heart disease as a significant health problem. This Web site contains a broad range of scientific, research, advocacy, service, and education information about heart disease.
Coalition of State Genetics Coordinators
The Coalition is an organization of state and territorial genetics coordinators. The mission of the Coalition is to promote core public health functions as they apply to genetics.
Council for Responsible Genetics
The CGR is a national organization of scientists, environmentalists, public health advocates, physicians, lawyers and other concerned citizens. CRG encourages informed public debate about the social, ethical, and environmental implications of new genetic technologies, and advocates for socially responsible use of these technologies. It also monitors the development of new genetic technologies in two broad program areas: human genetics, and commercial biotechnology and the environment.
DNA Learning Center
A science center devoted entirely to public genetics education. Special emphasis has been placed on teaching genetics at the pre-college level. This center is an operating unit of the Cold Spring Harbor laboratory.
Educational Development Center
“One of the world's leading non-profit education and health organizations,” that brings researchers and practitioners together to create tools and conditions for learning, reaching people of all ages, backgrounds and abilities.
Family Voices
Families and friends speaking on behalf of children with special health care needs.
FORCE: Facing Our Risk of Cancer Empowered
A nonprofit organization for women at high risk of breast and ovarian cancer due to their family history and genetic status. The site is a resource for anyone who knows she is at risk, who wonders whether she might be at risk, or who cares about the issues and concerns associated with these cancers.
Foundation for Blood Research
The FBR finds more effective ways to identify, manage and prevent human disease through clinical and laboratory investigation, epidemiology, outreach science education, computer-based analysis, public health program design, population screening, and clinical testing.
Foundation for Genetic Education and Counseling
The Foundation was established to promote understanding of human genetics and genetic medicine among health professionals and the public. The aim of this site is to provide informative, current and engaging views of the nature and implications of research in human genetics.
Foundation for Genetic Medicine, Inc.
The FGM has two prime objectives: 1) To examine critical issues and help develop and gain acceptance for public policies which support and advance genetic medicine for improved human health, and 2) To help our society achieve “genomic literacy” through education about genetic medicine and research, and their ethical, legal and social dimensions and implications.
Geneforum
Geneforum helps users of this Web site understand recent advances in genetics and technology, and to address important/related ethical, legal, and social questions and issues.
Genetic Alliance
The Genetic Alliance is an international coalition of individuals, professionals, and genetic support organizations that is working together to enhance the lives of everyone impacted by genetic conditions.
Genetic Interest Group
A British National Alliance of organizations which support children, families, and individuals affected by genetic disorders. Its primary goal is to promote awareness and understanding of genetic disorders so that higher quality services for people affected by genetic conditions are developed and made available to all who need them.
Genetics Network of New York State
Serving: Puerto Rico, the Virgin Islands and New York State.
Hastings Center
The Hastings Center is an independent, nonpartisan, interdisciplinary research institute that addresses fundamental ethical issues in the areas of health, medicine, and the environment as they affect individuals, communities, and societies.
Howard Hughes Medical Institute
This Web site contains a report written in 1997 from the Howard Hughes Medical Institute entitled, “Blazing a Genetic Trail: Families and Scientists Join in Seeking the Flawed Genes that Cause Disease.”
The Institute for Genomic Research
A research institute with interests in structural, functional, and comparative analysis of genomes and gene products in viruses, eubacteria, pathogenic bacteria, archaea, and eukaryotes (both plant and animal), including humans. Located in Rockville, Maryland, TIGR has a large DNA sequencing laboratory and has modern facilities for bio-informatics, biochemistry, and molecular biology.
March of Dimes Pregnancy & Newborn Health Education CenterSM
The Center provides accurate, timely information and referral services to the public. The staff at the Center includes trained professionals who help people, one on one, to address personal and complex problems. They answer questions from parents, health care providers, students, librarians, government agencies, health departments, social workers—people from all walks of life and from around the world.
Mountain States Regional Genetic Services Network
Serving: Montana, Wyoming, Utah, Colorado, Arizona and New Mexico.
National Center for Genome Resources
The staff of NCGR works in the field of bio-informatics, which is a merger of biology and computers, with a goal of applying genetic data for humanity's best possible advantage.
National Coalition for Health Professional Education in Genetics
The NCHPEG is a national effort to promote health professional education and access to information about advancers in human genetics. NCHPEG members are an interdisciplinary group of leaders from over 100 diverse health professional organizations, consumer and voluntary groups, government agencies, private industry, managed care organizations, and genetics professional societies. By facilitating frequent and open communication between stakeholder groups, NCHPEG seeks to capitalize on the collective expertise and experience of members and to reduce duplication of effort.
National Organization for Rare Disorders
NORD is a unique federation of voluntary health organizations dedicated to helping people with rare “orphan” diseases and assisting the organizations that serve them. NORD is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service.
National Partnership for Women and Families
The NPWF is a nonprofit, nonpartisan organization that uses public education and advocacy to promote fairness in the workplace, quality health care, and policies that help women and men meet the dual demands of work and family.
New England Regional Genetics Group
Serving: Maine, Vermont, New Hampshire, Massachusetts, Rhode Island, and Connecticut.
New York Online Access to Health
NOAH seeks to provide high quality full-text health information for an under-served population of health consumers that is accurate, timely, relevant, and unbiased. NOAH supports English and Spanish.
Science and Technology: PBS
Search the PBS web site for “genetics” related issues. More than a 1,000 matches can be found relating to a wide variety of fundamental and clinically-related issues.
Technology Museum of Innovation
The purpose of The Tech is to help educate, enlighten, and inspire the next generation of innovators, i.e., students grades K-12.
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