Genetics Education/Awareness Sites on the Internet

Genetics


	Genetics Education/Awareness Sites on the Internet Government Organizations California State Department of Health Services Search “genetics” at this state department of health web site for an example of how a state government can deal with the issue of genetics in public health. Centers for Disease Control and Prevention: Genetics Internet site of the Office of Genetics and Disease Prevention, of the CDC. The site provides current information on the impact of human genetic research and gene discoveries on disease prevention and health promotion. The site includes a weekly update of news stories, scientific literature, announcements, events, and public health perspectives on advances in human genetics. GEMdatabase The GEM (Genetic Education Materials) database lists and describes publications produced by federally funded regional genetics networks and some other federally funded projects. Links to ordering information and, when available, the on-line version of each publication are provided. Gene Gateway Scientists, enabled by the Human Genome Project, are churning out an unprecedented volume of data on human chromosomes and the tens of thousands of genes residing on them, many associated with genetic disorders. Gene Gateway is a collection of guides and tutorials designed to help students and other novice users get started with some of the resources that make these data available to the public. Healthfinder A guide to reliable health information. This Web site is a service of the U.S. Department of Health and Human Services. Human Genome Epidemiology Network HuGE Net is a global collaboration of individuals and organizations committed to the development and dissemination of population-based epidemiologic information on the human genome. The site features information on population-specific prevalence data on human gene variants, epidemiologic data on the association between genetic variation and diseases in different populations, quantitative population-based data on gene-environment interaction, and population impact on the use of genetic tests and services in improving health and preventing disease. Human Genome Project Information: U.S. Department of Energy Learn the basics about the Human Genome Project: what it is; its progress, history, and goals; frequently asked questions; and other information for people new to the project. Funded by the U.S. Department of Energy (DOE). Human Genome Research: U.S. Department of Energy The human genome research program was initiated by the DOE in 1986 to map and determine the complete DNA sequence of the human genome. The principal goal of this international program is to determine a representative human DNA sequence of all 3 billion base pairs in the human genome. The U.S. Human Genome Project is jointly managed by the DOE and NIH. Massachusetts State Department of Public Health Search “genetics” at this Web site for an example of how state government can deal with the issue of genetics in public health. Maternal and Child Health Bureau in the Health Resources and Services Administration, Department of Health and Human Services The MCHB provides its leadership, partnership, and resources to advance the health of all our nation's mothers, infants, children, and adolescents — including families with low income levels, those with diverse racial and ethnic heritages and those living in rural or isolated areas without access to care. Medline Plus Health Information A health resource Web site. Information covered includes: health topics, drug information, dictionaries and directories. This site is a service of the National Library of Medicine. National Cancer Institute CancerNet is the gateway to the most recent and accurate cancer information from the National Cancer Institute (NCI), a component of the NIH. National Center for Biotechnology Information Established in 1988, the NCBI has been given the responsibility to create systems for the storage of information, perform research, facilitate the use of databases (such as PubMed) and software for researchers and coordinate efforts to gather biotechnology information worldwide. National Heart, Blood and Lung Institute The NHLBI provides leadership for a national program in diseases of the heart, blood vessels, lungs, and blood, sleep disorders, and blood resources. National Human Genome Research Institute The NHGRI's mission is to head the human genome project for the National Institutes of Health (NIH). NHGRI is one of 24 institutes, centers, or divisions that make up the NIH. NHGRI: Ethical, Legal and Social Issues (ELSI) of Human Genetics Research The ELSI Program was established in 1990 to anticipate and address the ethical, legal, and social issues that arise as the result of human genetic research. National Institutes of Health Web site for the National Institutes of Health (NIH), U.S. Department of Health and Human Services. National Institutes of Health Office of Rare Diseases The ORD provides information on more than 6,000 rare diseases, including current research, publications from scientific and medical journals, completed research, ongoing studies, and patient support groups. National Library of Medicine The Web site for “the world's largest medical library.” In addition to the library database, this site also contains health information, research programs, news, and general information. Online Mendelian Inheritance in Man This database is a catalog of human genes and genetic disorders authored and edited by Dr. Victor McKusick and his colleagues at Johns Hopkins and elsewhere, and developed for the Internet by NCBI, the National Center for Biotechnology Information. The database contains textual information, pictures, and reference information. It also contains copious links to NCBI's Entrez database of MEDLINE articles and sequence information. Secretary's Committee on Genetics, Health and Society This Web site contains documents and information related to meetings of the Committee on Genetics, Health and Society that reports to the Secretary of the U.S. Department of Health and Human Services. Texas Genetics Network Serving: Texas. U.S. Congress on the Internet: Library of Congress For those who would like to access the latest congressional information by a bill or a particular issue, this is an excellent web site (for example, search on the word “genetics”). Virtual Library on Genetics This web site is a subject catalog covering genetics in the biosciences.

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