General Information
National Newborn Screening and Genetics Resource Center
1912 W. Anderson Lane, Suite 210
Austin, TX 78757
(512) 454-6509
Provides information and resources on newborn screening. Lists newborn screening tests by state.
Save Babies Through Screening Foundation
4 Manor View Circle
Malvern, PA 19355
(888) 454-3383
Provides information on newborn screening to parents and the medical community.
American Academy of Pediatrics
141 Northwest Point Boulevard
Elk Grove Village, IL 60007
(847) 434-4000
Information on Specific Conditions
American Sickle Cell Anemia Association
10300 Carnegie Avenue
Cleveland, OH 44106
(216) 229-8600
Genetic Alliance
4301 Connecticut Avenue, N.W., Suite 404
Washington, DC 20008
(202) 966-5557
Supports individuals with genetic conditions and their families.
National Center for Hearing Assessment and Management
Utah State University
2880 Old Main Hill
Logan, UT 84322
(435) 797-3584
Provides resources for both health care providers and families. The center has produced a 6-minute educational video for parents "Giving Your Baby a Sound Beginning," which is available in English and Spanish. The video may be viewed online at no charge, or a VHS copy may be purchased for $15.
National Coalition for PKU and Allied Disorders
P.O. Box 1244
Mansfield, MA 02048
(877) 996-2723
National Urea Cycle Disorders Foundation
4841 Hill Street
LaCanada, CA 91011
