March of Dimes
Clinical Issues and Considerations
  Newborn Screening: Results and Follow-up

In August 2000, the American Academy of Pediatrics Newborn Screening Task Force, a group convened by the AAP with funding from the Maternal and Child Health Bureau of the Health Resources and Services Administration, published a report called Serving the Family from Birth to the Medical Home: Newborn Screening: A Blueprint for the Future—A Call for a National Agenda on State Newborn Screening Programs (1). The report lists follow-up procedures as an important part of developing a public health infrastructure for newborn screening systems. “Newborn screening is more than testing—it always should be part of a system that includes screening tests, follow-up, diagnosis, treatment and evaluation as necessary.”

To find out about your state’s regulations on disseminating results and follow-up protocols, contact your state newborn screening program.


Reference
1. Serving the family from birth to the medical home. Newborn screening: a blueprint for the future—a call for a national agenda on state newborn screening programs. Pediatrics 2000;106(2 pt 2):389-427.


The information contained in this section does not constitute the endorsement of any specific state policy or procedure by the March of Dimes. Content is based on the New York State Department of Health manual “Newborn Screening in New York State: A Guide for Health Professionals,” provided by the Newborn Screening Program, Wadsworth Center, New York State Department of Health. The material has been modified for a national audience, and additional information has been added by the March of Dimes. 		 
  © 2008 March of Dimes Birth Defects Foundation. All rights reserved. The March of Dimes is a not-for-profit organization recognized as tax-exempt under Internal Revenue Code section 501(c)(3). Our mission is to improve the health of babies by preventing birth defects and infant mortality.