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Providers of genetic counseling include:
These health care professionals are experienced in helping families understand birth defects and how inheritance works. They provide information that helps families make personal decisions about pregnancy, child care and genetic testing.
Is genetic counseling for you?
Anyone who has unanswered questions about origins of diseases or traits in the family should consider genetic counseling. People who may find it valuable include:
What happens at a genetic counseling appointment?
When you go to see a genetic counselor, he or she:
Often genetic counselors can determine the risk of occurrence or recurrence of a condition and the availability of tests for it.
Evaluation of tests results usually is coordinated between the genetic counselor, the person or couple and the doctor. In the occasional case of troubling results, the counselor will provide information to help you make decisions (for instance, on the risk of having a child or more children). The counselor or the doctor can refer you to resources in your community that deal with a specific genetic condition, or to medical specialists, educational specialists or family support groups.
How to find a genetic counselor
A family can seek genetic counseling directly or be referred by a physician. Comprehensive genetic services centers are available in the United States, usually located within large medical centers or teaching hospitals. Smaller areas may be served by satellite clinics.
If you think you could benefit from genetic counseling:
There are many organizations that can provide you with guidance and information on a wide variety of topics related to genetics and specific inherited disorders. These are just a few:
March of Dimes
1275 Mamaroneck Avenue
White Plains, NY 10605
4301 Connecticut Avenue, N.W., Suite 404
Washington, DC 20008
National Society of Genetic Counselors
401 N. Michigan Avenue
Chicago, IL 60611
National Center for Education on Maternal and Child Health
P.O. Box 571272
Washington, DC 20057
National Dissemination Center for Children with Disabilities
P.O. Box 1492
Washington, D.C. 20013
National Organization for Rare Disorders (NORD)
P.O. Box 1968
Danbury, CT 06813