Guidelines for the Treatment of People with Sickle Cell Disease

Written by members of the Sickle Cell Advisory Committee (SCAC) of GENES (The Genetic Network of New York, Puerto Rico and the Virgin Islands) with  support from the U.S. Health Resources and Services Administration (HRSA).

These guidelines are a consensus document developed by health care providers who have both expertise and experience in working with sickle cell patients. Consumers provided significant input.

Topics include:

• Newborn screening
• Genetic testing and counseling
• Social work
• Nursing concerns
• Routine health maintenance
• Growth and development
• Emergency treatments
• Pain
• Infections
• Limp
• Osteomyelitis
• Splenic dysfunction and sequestration
• Acute anemia
• Chest pain and acute chest syndrome
• Obstructice sleep apnea
• Strokes
• Transfusion therapy
• Surgery and anesthesia
• Heart disease
• Eye problems
• Pregnancy
• Priapism
• Avascular necrosis
• Hepatic disorders and hyperbilirubinemia
• Urinary tract disorders
• Leg ulcers

For more information, contact:
Katharine B. Harris, M.B.A.
New York State Sickle Cell Program Coordinator
Wadsworth Center, Room E-297
P.O. Box 509, Albany, NY 12201
(518) 474-7148