Academic Organizations and InstitutionsCenter for Inherited Disease Research CIDR is a centralized facility established to provide genotyping and statistical genetics services for investigators seeking to identify genes that contribute to human disease. CIDR concentrates primarily on multi-factorial hereditary diseases, although linkage analysis of single gene disorders can also be accommodated.
Clinical Genetics: A Self Study for Health Care ProfessionalsAn online study guide that helps health care providers (1) identify individuals and families who might benefit from genetic services, (2) assist them in accessing these services, and (3) answer questions they might have following a genetic consultation.
Communities of Color and Genetics Policy Project
A five-year project designed to provide policy recommendations based on public perceptions and responses to the explosion of genetic information and technology. The project also tests the process of community dialogue as an effective means to engage citizens in thoughtful and productive discussions about policy needs regarding genetic information and technology and other value-laden issues.
Family Village The Family Village is a global community that integrates information, resources, and communication opportunities on the Internet for persons with cognitive and other disabilities, for their families, and for those that provide them services and support. The community includes informational resources on specific diagnoses, communication connections, adaptive products and technology, adaptive recreational activities, education, worship, health issues and disability-related media.
GeneTestsGeneTests is a publicly funded medical genetics information resource developed for physicians, other health care providers, and researchers, available at no cost to all interested persons.
Genes at WorkThis Web site informs health care professionals about human genetics including diagnosis and testing, clinical management and resources. The information is relevant to traditional areas of clinical genetic interest (such as pediatrics, obstetrics and oncology) and all other areas of practice including cardiology, hematology, surgery, internal medicine and family practice.
GenethicsThis Web site describes a wide variety of ethical issues in genetics. It contains the names and locations of ethicists interested in genetics, references, and information on topics such as gene therapy, testing, privacy and discrimination.
Genetics Education CenterA Web site from the University of Kansas for educators interested in human genetics and the Human Genome Project.
Genetics Education Program for NursesThe GEPN at the Children's Hospital of Cincinnati offers genetics educational opportunities and resources for nurses.
Genetics in MedicineThe journal of the American College of Medical Genetics. Its mission is to enhance the knowledge and practice of medical genetics.
Genetics Resource Center
An online resource and starting point for information about genetic counseling. From the Genetic Education and Counseling Program at the University of Pittsburgh.
Hardin MDA directory of health-related Web sites from the University of Iowa.
Information for Genetic ProfessionalsProvides clinical, research and educational resources for genetic counselors, clinical geneticists and medical geneticists. From the University of Kansas Medical Center.
The MCH NeighborhoodA cyber neighborhood of maternal and child health information featuring Web sites of projects funded by the Maternal and Child Health Bureau of the U.S. Department of Health and Human Services.
Mid-Atlantic Regional Human Genetics NetworkServing: Delaware, Maryland, New Jersey, Pennsylvania, Virginia, Washington D.C. and West Virginia.
National Center for Cultural CompetenceThe mission of the NCCC is to increase the capacity of health care programs to design, implement and evaluate culturally competent service-delivery systems.
National Newborn Screening and Genetics Resource CenterProvides information and resources in the area of newborn screening and genetics to benefit health professionals, the public health community, consumers and government officials.
The New Genetics: A Resource for Teachers and StudentsA list of genetic education Web sites aimed at students and teachers.
Pacific Northwest Regional Genetics GroupServing: Alaska, Idaho, Oregon and Washington.
Sickle Cell Information CenterThe mission of this site is to provide sickle cell education, news, research updates and worldwide resources for patients and professionals. From the Morehouse School of Medicine in Atlanta, Georgia.
Southeastern Regional Genetics GroupServing: Alabama, Florida Georgia, Kentucky, Louisiana, Mississippi, North Carolina, South Carolina and Tennessee.
