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Prematurity

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South Carolina's 2007 WalkAmerica Ambassadors
01-Feb-07
Alana’s Strength

Alana Aldridge was born 10 weeks early weighing only 2 lbs., 8 oz. As a result of Alana’s premature birth, she suffered many complications including apnea, reflux, and staph infections.  Being a strong fighter, Alana won the battle against premature birth and today is a healthy and beautiful little girl. Your support helps babies like Alana who come into the world too small or too soon.

The Andrews Family Journey

At twenty-four weeks and 5 days gestation, Anthony, Benjamin, and Collin Andrews were born. To anyone observing, it would have looked like a circus with 41 medical professionals attending to the birth of these beautiful little angels. The birth of these three beautiful babies was a true miracle in progress.

Tragically, 63 hours later, Anthony and Collins’ mission, to assure Benjamin’s survival into this world, was completed.  Both of the boys died within two hours of each other. Benjamin, at 1 pound 5 ounces, survived the many trials and challenges of the NICU and will always have his two guardian angels wherever he goes to protect him.

Benjamin is blessed to have survived 3 ½ months of ventilation on a respirator; 1 ½ years on oxygen, and to date, 11 years of occupational, physical, speech, and sensory integration therapy.  He possesses many strengths but faces daily physical, social, emotional, and cognitive challenges to adapt and adjust to his limitations from extreme prematurity.

Abby’s Journey

Abby Cox of Pickens County was born on Sept. 19, 2000, and weighed 15.4 oz. She was in the Neonatal Intensive Care Unit until December 12. Abby was diagnosed with BPD, a problem with her lungs that she would eventually outgrow.  Abby had a hernia that required surgery at 2 months of age and was on C-PAP breathing machine for over two months. When Abby was finally able to go home, she required oxygen and heart monitors for several months.

Abby is now a happy, healthy child with many blessings.

The March of Dimes spearheaded the development of Neonatal Intensive Care units and played a leading role in the development of therapies to help premature babies breathe.

Emily’s Journey

Emily Marie Gattis of Elgin, SC arrived nearly nine weeks early on January 30, 2006 weighing 3 lbs., 5 oz., and measuring just 14 ½ inches long. After her birth, she was quickly taken to the NICU and it was hours before we could see her.  My first glimpse of her in the isolette made my heart sink. I couldn’t believe how tiny she was compared to our first daughter who was born full term. Emily was diagnosed with a brain bleed, and required breathing treatments. After 27 days in the NICU, she was discharged, and even though she weighed just 4 lbs., 7 oz., she required no special equipment at home, and the brain bleed had dissolved.

Today, at 11 months, Emily is thriving. We are grateful to the March of Dimes for their role in the development of Neonatal Intensive Care Units, and for funding the research that has produced life-saving medical treatments for tiny babies. Thank you for helping babies like Emily!

-- Jennifer Gattis, Emily’s Mom

Ella’s Journey

Ella Rose Gordon, daughter of Patience and Scott Gordon, was born too soon and too small, weighing 2 lbs., 5 oz. Her first crib was an incubator and her first bottle was an IV supplement and a feeding tube. As her parents describe it: “It was terrifying having our baby in the NICU at MUSC in Charleston. There were so many machines, wires and tubes. My heart ached for this tiny child with her mouth held open by a huge tube going down her throat. Her skin seemed far too thin and fragile to support the many needles and IVs. I can’t imagine the pain she was in. Today, we know that March of Dimes research enabled our daughter to survive.”

Ella Rose was finally able to go home two months later, but required oxygen, and a monitor for her heart and breathing. Today, Ella is a living symbol of the March of Dimes successful fight to give every baby a healthy start.

Sarah and Grace’s Journey

Andrew and Mary Frances Hendrix were preparing for the birth of their twin daughters. At 28 weeks into her pregnancy, Mary Frances’ water broke. She was admitted to the hospital and over the next four days received steroid shots to speed up the babies’ lung development.

Sarah and Grace were delivered by emergency Cesarean section. Sarah weighed 2 pounds, 12 ounces, and Grace weighed 2 pounds, 6 ounces. The babies were in the NICU for 12 weeks while they overcame respiratory distress, bradycardia episodes, infection, and low birth weight. At 7.4 pounds each, they came home needing several medications and apnea monitors.

Today, Sarah and Grace are almost 4 years old and show no signs of their prematurity. The Hendrix family credits the March of Dimes with the lifesaving treatments that their babies received in the hospital. Their story represents just one of the more than half a million babies born prematurely each year in this country.

Emma and William’s Journey

Emma and William Kirlin were born in Greenville on March 18, 2006, arriving seven weeks premature. They came into this world too soon and as a result had to spend 18 very long days in the NICU at the Greenville Hospital System. Because of medical advances made possible by the March of Dimes, Emma and William are here today and are healthy and happy babies.

Jonathan Lewin’s Journey

On February 27, 2002, Jonathan David Lewin was born 16 weeks premature. He weighed 1 pound, 11 ounces and was immediately taken to the NICU at MUSC. On day seven of his life, he suffered the first major set back. He had a bowel perforation and doctors told us that Jonathan probably would not survive. He did survive, but a few days later was diagnosed with a massive cerebellar brain bleed. Along with these issues he battled sepsis, enlarged kidneys, and was diagnosed with severe ROP, which required eye surgery to keep him from going blind. Jonathan also had Broncho Pulmonary Dysplasia (BPD) and was on two different kinds of ventilators for over two months. Without the surfactant therapy developed through March of Dimes research, he would not have had a chance to breathe. Jonathan lived in his tiny “glass house” for three months before he weighed enough to be able to keep his body temperature regulated. On June 11, 2002, about six days after what should have been his birth date, he was discharged to go home with oxygen, a feeding tube and a heart monitor.

Today Jonathan is a very active toddler, despite the cerebellar bleed that could have made him immobile. He loves to chase his baby brother around the house and pull his wagon around the yard.  He is the happiest, most loving little guy who has never met a stranger. He goes to school and loves to ride the school bus.

Thank you for helping raise money to help babies like Jonathan!
--Melinda and David Lewin, Jonathan’s parents

Madison's Story

On Friday, November 19, 2004 after being hospitalized for 7 days. Tamara at 31 weeks pregnant was told here was nothing else St. Francis Hospital could do to stop the contractions that she was having. She was transferred to the Medical University for South Carolina to have the little miracle that was coming.

Madison was born Sunday, November 21, 2004 at 12:19am weighing 3lbs 12 ounces and 16 ¼ inches long. She had no breathing complications or health issues at the moment. Madison stayed in the hospital for 4 weeks and was able to come home on December 21, 2004 at 1 month of age. She had little hiccups in the hospital with eating and drops in oxygen but was pretty good otherwise. After Madison was home for about 3 weeks she started having severe reflux which is part of prematurity and had to be checked out for any other problems. At that time is when the doctors found a mass in her abdomen. After 3 exploratory procedures Madison at 3 months old had surgery to find out what this mass was. Tamara and Tommy where told that their daughter would only have one ovary because the mass in their tiny baby was a cyst that had destroyed her right ovary and it had to be completely removed. What a relief that it wasn’t something worse. After her surgery Madison has done well besides not being able to walk and talk properly for her age which is a common thing with prematurity so she has had months of therapy that have paid off.

Madison now a true miracle and blessing to her parents is a happy, loving 2 year old big sister to her brand new baby brother.

 

The Journeys of Nikkos and Silas

Nikkos and his parents Jonna and Chris Pantelis know the real meaning of being a little bundle of joy. Nikkos was born seven weeks early on February 9, 2006, weighing only five pounds.

MacKenzie and Josh Rogers also know what a great blessing their son is. Silas was born 10 weeks early on November 14, 2005 and weighed 3 lbs., 10 oz.

These boys, who are this year’s WalkAmerica Ambassadors for Spartanburg, spent a total of 45 days in the NICU. Join them at WalkAmerica to help raise awareness of the growing problem of premature birth.

Meet JaeLyn Patterson

JaeLyn Patterson arrived much sooner than expected after only 6 months of pregnancy for her mother Jennifer Hartley.  Born August 11, 2005, JaeLyn weighed a tiny 2 pounds and 5 ounces.  Having just moved to Florence a week earlier and this being their first child, Jennifer Hartley and Mark Patterson were scared and concerned for their baby: “the machines, tubes, and wires that were coming out of JaeLyn and hooked to her scared me” Jennifer Hartley stated.  But each day in the McLeod NICU, JaeLyn grew stronger and the day finally came when she was ready to go home.  By this time, her weight was up to 3 pounds and 15 ounces.  

Today JaeLyn is a healthy, vibrant 18 month old toddler.  She has struggled with her weight, and underwent surgery to place tubes in her ears, but is otherwise very strong.  The Hartley-Patterson family is very grateful to McLeod hospital and the excellent care they provided JaeLyn during her two months in the NICU.  “I cannot express how much I love those men and women who work there.  We still go up and visit from time to time, when Jae isn’t sick; and it is always so great to see their reactions when they realize it is Jae” says Jennifer.   “She’s our Miracle”!

Meet Luke Warren Perritt

Luke Warren Perritt was born at 23 weeks and 5 days weighing 1 lb., 2.7 oz., and measuring just 11 inches long. His eyes were fused shut and remained that way for eight days. He was put on a ventilator and remained on it for over a month. His blanket was a sheet of bubble wrap to protect his skin from the light. Luke spent four months in a Neonatal Intensive Care Unit. Shortly after going home, Luke was admitted to the hospital for RSV. Additionally, he had pneumonia and hypertension as well as whooping cough, but Luke survived and is doing well today.

Ryan’s Journey

Scott and Jill Piontek, parents of Tyler, 8 and Nathan, 2, were familiar with the NICU. With Tyler’s birth came a breathing disorder and a two-day stay. Nathan also was admitted to the NICU for a few hours following his birth. So, when Ryan Charles Piontek was born four weeks early on August 29, 2006, they anticipated that he would follow in the footsteps of his older brothers and require a short stay in the NICU. However, they did not anticipate what would happen in the coming days.

Ryan’s breathing turned progressively worse and he was diagnosed with persistent pulmonary hypertension, PKU and respiratory distress syndrome. When his condition did not improve, he was whisked by helicopter from Self Regional Healthcare to The Medical College of Georgia, where he was placed on an oscillator and treated with nitric oxide therapy. For nine days the Pionteks were only allowed to place their hands on the top of his head. Through the treatments that Ryan received – many researched and funded by the March of Dimes – his conditions improved and today Ryan is home with his family and a happy, healthy baby.

Jana and Judd’s Journey

In June of 2005, Katye and Greg Price were surprised and excited to learn they were expecting twins. One day shy of Katye’s 29th week of pregnancy, Jana Elizabeth and Judd Gregory Price were born only weighing 2 lbs., 13 oz. and 3 lbs., 3 oz.  “Words can not express the sensitivity, understanding, and compassion we felt from each nurse and doctor in the Neonatal Intensive Care Unit. For the first 40 days and nights of our babies’ lives, we had to leave them in the care of someone other than us. The only comfort we had in doing so was knowing the people taking care of them loved them and wanted them to get better as much as we did,” said Katye.  Join Jana and Judd and the Price family at Cherokee County’s WalkAmerica and help raise awareness of the growing problem of premature birth.

Kennedi Russell’s Journey

On October 6, 2004, Kennedi Kaiyla Russell was born at only 26 ½ weeks gestation. She was brought into this world through an emergency C-section, and I did not get to see her for hours. She weighed only 1 lb., 10 oz., and she was the tiniest baby I had ever seen. She was so beautiful, but I did not get to hold her because she was rushed to the NICU.

My first trip to the NICU was horrifying. I did not know what to expect when I saw Kennedi. As I approached her incubator, my eyes welled. There were wires and probes everywhere on her little body. You could barely see her through all the equipment. Kennedi spent 56 days in the NICU at MUSC. Just after Thanksgiving, she was discharged weighing 3 lbs. and requiring an apnea monitor. We considered it a holiday miracle to have her home for her first Christmas and are so grateful to the March of Dimes for helping tiny babies like Kennedi.

-- Jan’nell Russell, Kennedi’s Mom

Clara and Jacob’s Journey

Mike and Krystal Sherwood were delighted to be expecting twins, due in the spring of 2005. The pregnancy progressed well until the twins reached 25 weeks gestation and medical complications brought on premature labor. Clara and Jacob were born weighing 1 lb., 10 oz., and 1 lb., 12 oz., respectively. The joy and excitement of the twins’ birth soon changed to heartache and concern when Jacob passed away after nine days and Clara struggled to survive.

After spending 95 days in the hospital and with her twin, Jacob, now serving as her guardian angel, Clara was able to go home. Today, Clara is a beautiful, happy and healthy child that will forever share a bond with her guardian angel, Jacob.

The March of Dimes spearheaded the development of Neonatal Intensive Care Units and played a leading role in the development of therapies to help premature babies breathe.

Lilly's Journey

Jennifer and Don Raye Shetley of Union County anxiously awaited the arrival of their daughter Lillian “Lilly” Frances after 35 weeks of a problem-free pregnancy. Then a routine check-up revealed that Jennifer had developed pre-eclampsia. The decision was made to deliver Lilly immediately. Though she was born weighing 6 lbs., 8 oz., Lilly suffered medical problems, including serious breathing complications. After four long weeks in the NICU, Lilly was able to go home, but still required oxygen. Today, Lilly is almost 10 months old and is doing very well.

Garrett’s Journey

Joel “Garrett” White of Oconee was born in May of 2003, weighing 12.6 oz. and measuring just 10 1/4 inches long. He was given a 50% chance of survival. During the first three weeks of life, his parents, Marsha and Neal, could not even hold him. He was on a ventilator and trying to breath with a C-PAP machine. Slowly, he gained weight and strength, but endured complications including a hernia diagnosis and optic nerve surgery to prevent blindness. He was in the NICU for 102 days.

Today Garrett is a healthy, bright, and curious three year old.


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The Premature Birth Campaign
South Carolina extends special thanks to our campaign corporate partners: BlueCross BlueShield of South Carolina, Palmetto Health, and Select Health of South Carolina.

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© 2012 March of Dimes Foundation. All rights reserved. The March of Dimes is a not-for-profit organization recognized as tax-exempt under Internal Revenue Code section 501(c)(3). Our mission is to improve the health of babies by preventing birth defects, premature birth, and infant mortality.